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Care givers experiences of caring for people with intellectual disability and dementia: a qualitative evidence synthesis

Acton, Danny
; 
Jones, Steven
; 
Jaydeokar, Sujeet
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Affiliation
Cheshire and Wirral Partnership NHS Foundation Trust; Centre for Autism Neurodevelopmental Disorders and Intellectual Disability (CANDDID); University of Chester
EPub Date
Publication Date
2023-01-20
Submitted Date
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Chester Medical School
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Abstract
This paper aims to identify the lived experience of anxiety from people with intellectual disabilities and being co-design partners in developing a multi component approach to the management of anxiety. Design/methodology/approach The development of an anxiety manual and programme was part of a service development which allowed existing and establish psychological therapies be adapted for people with intellectual disabilities. A qualitative approach was used to understand the views of people who experience anxiety on a daily basis. The feedback generated was used to make modifications to the manuals and anxiety management programme. Findings The study has demonstrated the value of involving people with intellectual disabilities in co-production of an anxiety management programme. Additional findings identified the rea life challenges and experiences of the impact anxiety has on people’s lives.
Citation
Acton, D., Jaydeokar, S., Jones, S. (2023). Care givers experiences of caring for people with intellectual disability and dementia: A qualitative evidence synthesis. Advances in Mental Health and Intellectual Disabilities, 17(1), 10-25. https://doi.org/10.1108/AMHID-08-2022-0027
Publisher
Emerald
Journal
Advances in Mental Health and Intellectual Disabilities
Research Unit
URI
http://hdl.handle.net/10034/627409
DOI
10.1108/AMHID-08-2022-0027
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PubMed Central ID
Type
Article
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Description
© [2022, Emerald Publishing Limited]. This AAM is provided for your own personal use only. It may not be used for resale, reprinting, systematic distribution, emailing, or for any other commercial purpose without the permission of the publisher
Series/Report no.
NA
ISSN
2044-1282
EISSN
2044-1290
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https://www.emerald.com/insight/content/doi/10.1108/AMHID-08-2022-0027/full/html