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Exploring the lived experiences and care challenges of formal paid caregivers for people with intellectual disability and dementia

Acton, Daniel
; 
Jaydeokar, Sujeet
; 
Taylor, Ruth
; 
Jones, Steven
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Other Contributors
Affiliation
Cheshire and Wirral Partnership NHS Foundation Trust; University of Chester
EPub Date
Publication Date
2024-05-30
Submitted Date
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Chester Medical School
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Abstract
A greater number of people with intellectual disability are living into older age and are at increased risk of developing conditions such as dementia. Caring for a person with dementia presents several challenges for formal caregivers due to the progressive nature of the disease. An interpretive phenomenological analysis was used to understand the lived experiences of a purposive sample of formal caregivers in caring for people with intellectual disability and dementia. Discussions from 14 individual interviews generated data were analysed. Four key super-ordinate themes emerged which were: (1) recognising early indicators and diagnosis, (2) post diagnostic support, (3) coping with change and (4) need for future development. Themes reflected the experiences, barriers to dementia diagnosis and provide a valuable insight into the challenges faced by formal caregivers in providing aged care services.
Citation
Acton, D., Jaydeokar, S., Taylor, R., & Jones, S. (2024). Exploring the lived experiences and care challenges of formal paid caregivers for people with intellectual disability and dementia. Journal of Intellectual Disabilities, vol(isue), pages. https://doi.org/10.1177/17446295241259076
Publisher
SAGE Publications
Journal
Journal of Intellectual Disabilities
Research Unit
URI
http://hdl.handle.net/10034/628739
DOI
10.1177/17446295241259076
PubMed ID
PubMed Central ID
Type
Article
Language
Description
This document is the Accepted Manuscript version of a published work that appeared in final form in [Journal of Intellectual Disabilities]. To access the final edited and published work see https://doi.org/10.1177/17446295241259076
Series/Report no.
ISSN
1744-6295
EISSN
1744-6309
ISBN
ISMN
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Sponsors
Unfunded
Additional Links
https://journals.sagepub.com/doi/10.1177/17446295241259076