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Spontaneous concerns about risk and abuse reported by people with dementia and their carers
Benbow, Susan M. ; Kingston, Paul
Benbow, Susan M.
Kingston, Paul
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Affiliation
EPub Date
Publication Date
2017-04-10
Submitted Date
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Main article
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Abstract
Purpose
To look at concerns about risk/ abuse expressed spontaneously by people
with dementia (PwD) and their carers in narratives describing their journeys
with dementia.
Method
Thirty-five narratives were elicited from PwD, carers of PwD and couples
where one partner was living with dementia as part of a study on the impact of
producing narratives on PwD and their carers. Participants were found to
allude to risk/ abuse, or specifically mention thoughts on risk and abuse in
their narratives. A secondary analysis of the theme of risk/ abuse is reported
here.
Findings
Concerns about risk/ exploitation were often expressed in the narratives, and
covered a range of areas including driving; safety in the home; safety
outdoors; falls; finances; risk to PwD from others; risk to others from PwD;
potential or actual police incidents; and neglect.
Research limitations
The narratives were elicited as part of another project and participants were
not asked directly about risk: themes reported here were brought up
spontaneously by participants.
Practical implications
In relation to dementia a wide range of risk/ abuse issues is of concern to
PwD and their carers, including driving and financial vulnerabilities. PwD and
carers are prepared to talk about risk/ abuse when given an opportunity. It is important to investigate and understand experiences and concerns about risk/
abuse if they are to be addressed in health and social care practice.
Originality
The narratives offer unique insights into the concerns of PwD and family carers.
Citation
Benbow, S. M., & Kingston, P. (2017). Spontaneous concerns about risk and abuse reported by people with dementia and their carers. Journal of Adult Protection, 19(2), 92-99. DOI: 10.1108/JAP-12-2016-0030
Publisher
Emerald
Journal
Journal of Adult Protection
Research Unit
DOI
10.1108/JAP-12-2016-0030
PubMed ID
PubMed Central ID
Type
Article
Language
en
Description
Series/Report no.
ISSN
EISSN
2042-8669
