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Spontaneous concerns about risk and abuse reported by people with dementia and their carers

Benbow, Susan M.
Kingston, Paul
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EPub Date
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2017-04-10
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Abstract
Purpose To look at concerns about risk/ abuse expressed spontaneously by people with dementia (PwD) and their carers in narratives describing their journeys with dementia. Method Thirty-five narratives were elicited from PwD, carers of PwD and couples where one partner was living with dementia as part of a study on the impact of producing narratives on PwD and their carers. Participants were found to allude to risk/ abuse, or specifically mention thoughts on risk and abuse in their narratives. A secondary analysis of the theme of risk/ abuse is reported here. Findings Concerns about risk/ exploitation were often expressed in the narratives, and covered a range of areas including driving; safety in the home; safety outdoors; falls; finances; risk to PwD from others; risk to others from PwD; potential or actual police incidents; and neglect. Research limitations The narratives were elicited as part of another project and participants were not asked directly about risk: themes reported here were brought up spontaneously by participants. Practical implications In relation to dementia a wide range of risk/ abuse issues is of concern to PwD and their carers, including driving and financial vulnerabilities. PwD and carers are prepared to talk about risk/ abuse when given an opportunity. It is important to investigate and understand experiences and concerns about risk/ abuse if they are to be addressed in health and social care practice. Originality The narratives offer unique insights into the concerns of PwD and family carers.
Citation
Benbow, S. M., & Kingston, P. (2017). Spontaneous concerns about risk and abuse reported by people with dementia and their carers. Journal of Adult Protection, 19(2), 92-99. DOI: 10.1108/JAP-12-2016-0030
Publisher
Emerald
Journal
Journal of Adult Protection
Research Unit
DOI
10.1108/JAP-12-2016-0030
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PubMed Central ID
Type
Article
Language
en
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ISSN
EISSN
2042-8669
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http://www.emeraldinsight.com/doi/pdfplus/10.1108/JAP-12-2016-0030