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Caring for a child with a learning disability born into the family unit: Women's recollections over time
Lovell, Andy Mason, Tom
Lovell, Andy
Mason, Tom
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Publication Date
2011-08-01
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Abstract
Caring over time for a child/young adult with a learning disability requires that the family, and in particular the mother, negotiate their needs with services and professionals, and these negotiations are complicated further by significant behavioural issues in the children. This study reports on a series of interviews undertaken with mothers of children and young adults with learning disabilities and a history of challenging behaviours. The interviews were supplemented by documentary data from clinical and other notes in order to provide a more detailed view of the issues arising from caring over time. Detailed thematic analysis revealed five key themes demonstrating the cumulative effect of caring for someone with such complex needs, the centrality of that individual’s needs to the lives of those interviewed and the ongoing negotiation between family and professionals required in order for the former to work out how to continue caring both effectively and on their own terms. All the names of mothers and children are psuedonyms.
Citation
Scandinavian Journal of Disability Research, 2011
Publisher
Taylor & Francis
Journal
Scandinavian Journal of Disability Research
Research Unit
DOI
10.1080/15017419.2010.540827
PubMed ID
PubMed Central ID
Type
Article
Language
en
Description
This is the authors' print-print version of an article published in Scandianavian journal of disability research which is available online at: http://www.tandfonline.com/doi/abs/10.1080/15017419.2010.540827
Series/Report no.
ISSN
1501-7419
1745-3011
1745-3011